Dear Parents and Caregivers,
What a ride! If you have reached this point, acknowledge to yourself that you have done something brave. You have paused in the midst of all your daily challenges to think about the future. Whether you have filled in just one line or many sections, you have begun your planning journey.
Planning for “Life After Death” often stirs many emotions - love, fear, worry, grief, and perhaps even hope. All of your feelings are valid and okay. They are shared by many caregivers like yourself.
Through it all, remember that this playbook was not created to rush you or measure you; it was crafted to walk this journey together with you. It is not a checklist to complete perfectly. It is a living guide that grows with your child, your family, and your community. You can always return to these pages whenever life moves—after a medical appointment, a change in routine, a new interest your child discovers, or an update to legal or financial matters.
Tiny Ways to Keep Going (choose one, or create your own)
- Tell a trusted person where the folder for the future caregiver is kept
- Review one section in a month’s time, and try updating just one detail
- Write down one question that you still have about your plans
- Move one step of your plan into action
Congratulations on taking the first step!
May this “Life After Death” plan help carry your love for your child forward.